I'm a dog-lovin', music-makin', jewelry-creatin', lover of life... and I just happen to have Type 1 diabetes. I think of it diabetes as my sometimes challenging friend, who sometimes frustrates me, but overall~ I know she's a weird kind of blessing.
Like most Dexcom (G5) users, I try to wear one sensor as long as possible to save a little money. Usually I can get to just under two weeks before it starts to a. have wonky readings or b. become itchy and irritable at the insertion site or c. it just falls off due to lack of good adhesion.
But since moving from (humid) Texas to (dry) Colorado, I seem to be able to keep it in a bit longer, because I’m only dealing with 1 of those 3 challenges. I think my skin is dryer now, and so the adhesion seems to last longer. Bad for aging, good for Dexcom usage.
I was able to wear my last sensor nearly 3 weeks! Finally, because my readings were getting more and more off, I decided adhesion or not, it was time to switch it out for a new one.
I noticed a red bump where the little wire inserts looked bigger and more angry than usual. Usually, I don’t even notice it. Or if I do, it’s gone the next day. But the little red bump was actually more of a lump. I can feel a weird hardness underneath my skin that feels like it has a diameter of at least 1/2 an inch.
I’ve heard some people can get a whole month out of their sensors, but I don’t know how they’re doing it without this weird and unattractive lump reaction. I guess like with just about everything else when it comes to T1, everybody is different.
So my new personal rule for how often to change my insertion site is every 2 weeks. These are not the sexy humps Fergie was referring to at all.
This past weekend I attended the EPIC Diabetes Conference. And although it was good, that word EPIC sort of oversold it. But, notice EPIC is in all caps. EPIC is actually an acronym for Encouraging Patients for Individual Care. I’m not even totally sure what that means, but whatever. They wanted to use the word EPIC and they made it work.
I thought it was going to be the same thing as the awesome Type 1 Nation that my friend Tanya Conovoloff (of JDRF) curates that I’ve gone to in Dallas for the last several years. This EPIC conference, however, was geared for both Type 1s and Type 2s and their families. I think it would have been better if they had two separate events, since the challenges and treatments of the two are so different. Anyone with T1 knows this is a thing. This lumping together T1 and T2, the fact that they’re both called diabetes, urgh. I am not alone in wishing that would change.
There were two morning sessions and then one more after a lunch break. Probably the best thing was saved for the end of the day when Dr. Ed Damiano spoke about the Bionic Pancreas (called the iLet, get it?!) that his company, Beta Bionics is working on.
Like he said, it’s not a cure, but it’s a great thing that is on the horizon for real in the very near future. No matter when you were diagnosed with Type 1, you were likely told there would be a cure within 5 or 10 years. It wasn’t true when I was told that 23 years ago, and it’s probably not true now either. So I’m always interested to hear about what is true and real, not some overly hopeful lie about how close they are to finding a CURE. This closed loop idea is pretty cool. And it’s REAL.
There seemed to be more Type 1s than Type 2s at the conference. I think everyone I actually talked to (actually just a handful of people tho) was either a Type 1 or the parent of a Type 1. Maybe next year, we’ll get our own conference and we can have sessions that are more specific to what we care about. And the T2s can have their own thing too, for the same reasons. I doubt they were be all that jazzed about a Bionic Pancreas, as we were.
It was a great event for someone newly diagnosed, for sure. A lot of basic 101 information. And for me, it was a nice way to meet some people in a new town. And to find out a little about some endocrinologists around here. Maybe not EPIC, but most definitely with the $10 it cost to go.
In my last post here, I wrote about the new Dexcom G5 display device that I had just received. I was lukewarm about the changes that had been made, basically saying it wasn’t better or worse, and I hoped Dexcom didn’t spend much money making the changes.
However, after using it for a few days: I hate it. I hate it so much I didn’t even bring it with me on a 2 week trip to Colorado.
My main beef is the new larger size. It’s almost as big as my iPhone. And like my iPhone, this larger display device doesn’t fit in a lot of my little pockets.
My secondary beef, I don’t like that you have to press 1 and then 2 to unlock the screen to do anything beyond just seeing what your current blood sugar is. It’s an extra annoying step, and seems pointless.
So the two main changes they Dexcom made to this new device in my opinions were really bad ideas. And seriously, I’d like to know, who’s idea were these anyway? I don’t think someone who actually uses it would have wanted a larger thing to carry around all the time, or the unnecessary extra steps of pushing 1 and then 2 all the time.
Dexcom, please- For those of us that still like using the receiver, please bring back the old one.
I suspect, like so many, I’m ordering up all my diabetes supplies and prescriptions as the year comes to an end. I’ve hit my insurance deductible so prices are very affordable for me now. But come January, that will change.
So, it was time to order a new Dexcom receiver this month. When I ordered it, I asked for the pink option, as I always do. I’m a girl that loves pink. But in this case, it’s beyond just a color preference. Having something that was a bright color, rather than black, made it so much easier to find, down in the depths of the black hole, also known as my purse. But the Dexcom rep told me they no longer made it in black. We talked about how maybe I could just put some decorative tape on it or something. Although I was disappointed they did away with the pink option, it was not a big deal.
But what sort of was a big deal- at least to me- was opening up my new receiver and seeing that it has been totally transformed. Nobody mentioned anything about that when I had called Dexcom.
Here’s the low down down on the changes to the Dexcom receiver, which is actually now called the “display device”.
First of all, I’m happy to report, the Dexcom rep was wrong regarding the pink not being an option. I won’t have to buy tape or anything else to make my black receiver pink. It comes with a pink, blue, and black case. Options! Even better than before.
Here is a side by side view of the older model compared to the new.
As you can see, the new one is slightly bigger, but that’s because the screen provides a display very similar to the iPhone. In fact, here is the new receiver next to my iPhone. It’s about the same size if you cut off an inch from the top of the iPhone.
Also similar to the iPhone, the Dexcom receiver is now a functioning touch screen. However, you can’t turn it horizontally to view more data like you can with a smart phone. And although you can enter in data, like how many units of insulin you have taken, it doesn’t show up on the graph like it does on the smart phone. (So why would I bother entering it?)
It comes with a charger that has a lime green cable. I love that they made it easy to differentiate that cord from the plethora of others we have piling up in our house for so many different devices.
I know a lot of people don’t even use a Dexcom receiver, and instead just opt to get the information from their smart phone. I’ve remained a fan of the receiver tho- I like that I can push less buttons and quickly get the information I need- Like, for example, during a yoga class. I don’t want people to think I’m texting, but if I used my iPhone to access my Dexcom, I think assumptions might be made.
As before, you can view your current blood sugar number by hitting one button on the Dexcom display device. However, to do anything more, you’re required to hit a button twice to fully unlock your display device. This is new, and I don’t know why it’s a good thing. But I’m sure there’s a reason they did it like that.
The main thing I wish Dexcom had thought of- and if they had asked me first, I would have begged them for this- would be some kind of GPS so that when I misplace my display device, I can locate it with my iPhone. I’ve been saying it needs that feature ever since the G5 came out!
The change in the receiver/display is pretty insignificant overall and I hope they didn’t spend much money on the changes. While the display IS nicer (but not that important to me), the device is larger (and smaller IS important to me). Oh well. None of these changes were a big deal. I’m way more interested in the next insertion device they roll out– soon, hopefully!
I’ve had Type 1 for well over 20 years. I’m pretty sure it’s 22, maybe 23 years ago now, actually. But time goes so fast, and I’m not one of those people that knows my exact “diaversary”, so I can’t be totally sure.
But for sure, it was a long time ago.
I can still remember some things about my pre-diagnosis symptoms . And I can still remember a few things about that big learning curve I went through during those first few months upon diagnosis. And there’s little funny stories and things related to my “diabetes journey” that I can still recall.
It’s fun to remember back to something that happened so long ago, and that I was so overwhelmed by at the time. I love looking back, and then seeing how far I’ve come. Type 1 turned out to be a lot less life altering than I first thought it might be. So, I’ve been jotting down a lot of those stories lately, in hopes of preserving what’s left of those memories. I’ve actually been working on this off and on for about a year now.
There’s a website called CreativeLive.com. They offer all sorts of online classes ranging from jewelry making, to photography, to podcasting. This weekend, they had a 50% off sale on all classes so I gave myself a few early Christmas gifts… and one of them is a class called “How To Write and Publish an E-Book”.
When I saw that class title, I immediately thought that yes!, I’d really like to turn this writing I’ve been working on into a little e-book. It feels like it’s a great time to hunker down and do a little more writing than usual. Then, maybe I can finally say, “I wrote a book.” #lifegoal
Back when I first got my Dexcom, two or three years ago, I downloaded the Clarity app on my phone and also looked at Clarity on my computer. The phone app had very little to offer, but it did tell you an average of your readings over a 30, 60 and 90 period. It also gave you a A1C predictor, based on your readings that equated with that average. But that was about all it showed, that I recall.
If you went to Clarity via a computer though, you could view a lot more information. There were various graphs that showed different things, like an overlay of your blood sugars over an entire month. But I never became very familiar with it because it was on my computer rather than my phone, and I never spent the time looking at it. It just wasn’t all that convenient.
Eventually, the app did away with the predicted A1C number. I’m not sure why. But I can look on a chart and figure that out anyway as long as I know my blood sugar averages. So really, who cares? I didn’t and I still don’t.
This week, I had an appointment with my endocrinologist. The nurse asked for the code generator for them from the Clarity phone app so they could view my Dexcom information. It just happened to be, that out of boredom, while I was waiting for the doctor, I was playing around on my phone and noticed the app had all sorts of new bells and whistles since last time I had looked out it. I use the term new loosely, because honestly, I have no idea when these new features were added. I hadn’t looked at it in well over a year.
So, this may or may not be news to anyone but me that uses a Dexcom.
But if you haven’t looked lately at the Clarity phone app, it’s worth looking again.
You can now look at your average blood sugars for 48 hours, 7, 14, 30 or 90 days. I like that! Sometimes, it’s nice to just take things week by week- or less.
But wait, there’s more!
There are now 8 different reports to view. If you click “reports” at the bottom of the screen, something similar to this pops up. Then, click in the middle box portion, just below 7/14/30/90 days, and above where it says “view report”. You’ll then have a list of all 8 reports you can view:
You can then select one or all of those 8 reports by clicking on them.
Some of the reports are a little hard to look at due to screen size on phone, but you can zoom in. When I looked at some of the graphs, for example the AGP (that stands for Ambulatory Glucose Profile- I looked it up!) I was able to see a repeating pattern I want to improve on. Around 3-4pm most days, my blood sugar is usually at it’s highest. I have some ideas on why that’s happening, and how I might improve upon it that I will try over the next few weeks.
I plan to learn a little more about how to read these various charts provided with the Clarity phone app. Having the Dexcom has provided information that has helped me get me tighten my control since I began using it, and maybe these new features will motivate me to tighten it even more! It hadn’t really dawned on me how almost every day around 3:30pm, my blood sugar is at it’s highest. Now that I’m aware, I want to see what kind of an adjustments might make sense.
I’ve said it before, and fortunately, I get to say it again: I just had my best ever A1C with my most recent lab work. Knowledge is power. I know a lot more about how things effects my blood sugars, thanks to Dexcom. I continue to tweak the way I do things regarding my blood sugar control. Those tweaks are subtle, as they should be. But little by little, things are getting BETTER.
It’s NaNoWriMo season. And in case you’ve never heard of that, I’ll fill you in. NaNoWriMo is short for National Novel Writing Month.
I can’t imagine writing a novel. Let alone writing it in just a month’s time. But what I can imagine is me finishing up my collection of a couple handfuls of essays about my T1 diabetes. I’ve started and stopped this project a couple of times already. I always start it because I really want to… I like looking back at how things, and seeing how far I’ve come. I think you can only recognize your best kind of growth when you look back. I think all of our stories of diagnosis, and how we dealt (and are dealing) with it are interesting. Every now and then, I get on a roll with this writing project, but then lose steam when I get busy with something that needs my attention.
But hey! This NaNoWriMo thing is a great kick-start to finish the first draft of my book about Type 1. I’ve already written an outline and maybe about half of it the essays. With one dedicated month, maybe I can pull it off. One month. That’s 4 weeks. 30 days. Actually, 29, since I’m starting on November 2nd.
So here’s my pledge- to myself more than anyone else really-
I will write each day this month towards finishing my book about diabetes. According to the outline I made last year anyway, it will have 14 chapters. I feel like I should be able to get the first draft done for all 14 chapters. That’s my goal. It’s doable.
And yes, I realize it’s not technically a novel. But like I said, I can’t imagine writing a novel. Not yet, anyway. But I can imagine writing the book I have in mind. I don’t think the NaNoWriMo rules are real strict, so I’m sure it’s okay.
I’ve heard it said before, “Write what you know.” I KNOW you, T1 Diabetes. I remember how we met, and I know that whether I like it or not, I’m stuck with you. I choose to see you as a good thing in my life, and I’m going to keep on making that choice daily. Just know, the tell-all is currently being written.
Seriously. This has got to stop. I’m not sure when it first started, but I haven’t gotten a solid night’s sleep in I-can’t-tell-you-how-long.
I don’t know what’s causing the problems. Although like just about everyone, I have some anxiety,but it’s not what I’m thinking about in the middle of the night. Maybe hormone fluctuations have something to do with it, but fortunately, if hormones are a part of this, they are NOT affecting my blood sugar. And for that, I’m grateful. Anyway, it’s not clear to me what the problem is between me and sleep. But lately, it hasn’t been a symbiotic relationship.
I don’t have a problem falling asleep, but staying asleep the duration of an entire night? Forget about it. I usually go to sleep around 11:30/midnight, and wake up feeling bright eyed and bushy tailed around 3:30am. I toss and turn. Finally fall back asleep after what seems like about an hour or so, and then it happens again around 5am. And there’s just no way I’m the kind of girl that likes to start her day at 5am. Nor am I the kind of girl that functions well on a mere 5 hours of sleep.
I’ve tried all sorts of remedies- mostly natural, and even some not natural because lately, I’ve gotten desperate! Here’s a list, off the top of my head, of the things I’ve tried to help me stay asleep during the night.
*warm baths with epsom salt (baths have always been a ritual of mine, but lately I’ve added in epsom salt and lavender oils)
*avoid screens (tv, computer, phone) as bed time approaches
*no caffeine beyond 2pm
*ear plugs and eye mask
*sniffing/rubbing on my temples some mix of essential oils that was given to me labeled “for sleep”
*this supplement that has melatonin, l-theanine and botanicals
*a magnesium supplement
*Ambien (Yep. I’ve heard scary stories about Ambien, but again- I’m now desperate enough to try just about anything that might help.) (And yes, I’m going to write a blog post on this, specifically, soon.)
If any of these things have helped, it’s been so subtle, I haven’t noticed. I still wake up around 3 or 4am feeling wide awake.
I’ve been listening to podcasts, and reading articles about how to get a healthy sleep routine going. I’m taking any and all recommendations. The new idea I’m trying this week that I just heard some sleep doctor talking about is: get OUT of bed if I’m not sleeping. He said we need our brain to associate the bed with SLEEP (or sex), not with tossing and turning. So, if you wake up, his advice is to go to another room, keep the light low, and do something like read until you feel tired enough to go back into the bedroom and fall asleep. I’ve tried that for the last few nights, and while I like getting in the extra hours of reading, I’m not sure it’s helping me change my sleep routine. In fact, I fear that it might be ingraining that 3am wakeup call even deeper into my book-loving brain.
Like I said, my sleep issues don’t seem to be directly hurting my blood sugar control or my diabetes in general. BUT, it’s well researched how vital sleep is to our overall health. Lately, I’ve had problems with my shoulder (supposedly tendonitus), my hand/wrist (supposedly carpel tunnel) and neck pain in general. I’ve said out loud, “I feel like I’m falling apart all of the sudden.” And when I think about my sleep- or lack thereof, it makes sense that this would be the case. SO: It’s important to me that I figure this out. My goal is to start sleeping a minimum of 7 hours each night. Right now, that sounds very lofty. But it’s just sleep I’m talking about here. SLEEP. Something I love. Something I want. Something I need. I CAN DO THIS.
I’m taking all tips, recommendations and advice if you have any to offer.
I haven’t had any clearly defined complications due to having lived with Type 1 for over 20 years. And I’m seriously grateful for that. BUT from time to time, I have little ailments that I wonder… Is this connected to being a Type 1?
My A1c tends to be anywhere from about 5.5% to 6.3%, and as time goes by and technology improves, it tends to be lower as the years go by. I work hard and obsess over keeping my blood sugars in range, but still, I have spikes and drops in my blood sugars on a daily basis. So, I’m far from perfect when it comes to blood sugar control.
In the past, I’ve had to have two surgeries for trigger finger. One, for my left pinky, and the other, for my right thumb (ouch. that one was a bitch.) Before I finally got the surgery, I tried cortizone shots. But they only helped for a short period of time, and then the trigger finger would return. The surgery, in my opinion anyway, was actually less painful than the shots. And, once you have the surgery, the problem doesn’t return. YAY! I have read about the correlation between diabetes and trigger finger. It has to do with inflammation. Who knows, maybe I would have had this problem regardless, but I suspect Type 1 played a pretty big role in it.
The surgeon I used for my finger trigger insinuated that I would heal quickly from the surgery, but both times, that was not the case. And again, I wonder, am I a slower to heal because of my Type 1? Even though my blood sugar control is good?
Lately, I’ve been having problems with my right shoulder. Not from an injury, but just over time, it’s gotten more and more sensitive, and my range of motion has become more limited. I got an MRI, and learned that I have bursitus and tendonitus. Again, an inflammation problem. And again, I wonder… is this related to my Type 1?
And even more lately- just the last 2 weeks- I’ve started having numbing in my left hand. I’ve been to a doctor about it, a physical therapist about it, and had an MRI. It could be related to spine problems I’ve had for many years, or it could be carpel tunnel. (More on that later, in another post- but for now, that’s enough to make my point.) Again, I’m wondering, “Dammit. Is THIS because of my diabetes?”
So although I’m not usually pissed at diabetes, sometimes I am. Right now, my numb left hand is so pissed that it wants to punch my diabetes in the face.
But that anger isn’t going to do me any good. It might even cause more inflammation, which I think this is all related to anyway. Maybe inflamed emotions lead to more inflamed body parts.
Maybe it’s a good time to just breathe. And remember that this is just a moment in time and it’s going to pass. And things might be stiff, and tingly and even numb, but still- everything is working. (“That’s what she said!”)
I’m writing this today to remind myself how fortunate I am. Fortunate for good insurance. Fortunate that I have nothing too extreme going on that I am limited from enjoying my normal happy life. Fortunate that I have the money to get the therapies I choose to help me through this. Fortunate to have friends I can call on (or text) to bitch to. It’s all good. I know my body is working on healing. Maybe it takes me a little longer to do that, but I can be patient.
On my last post, I wrote about how much I want a true to-it’s-claim, FAST acting insulin. I was pretty sure I had read about one, but when I was doing my super speedy Google search the other day, I couldn’t find anything about it.
But today on Facebook I saw a post that not only did it exist, but it just got FDA approval. YES.